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Megan Doerr
Director Applied ELSI Research
Meg's research focuses on operationalizing community interests in big health data research; addressing the ethical, legal, and social implications of informed consent, research participation, data governance, and data sharing; and promoting global collaboration and best practices
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Published: Nov 27, 2023
A guide for databank builders, funders, governments, researchers, and communities
Published: Mar 24, 2024
Join us as we work to design, build, and refine representative, fair, and inclusive data governance practices
Published: Apr 04, 2024
Developing and piloting a novel toolkit for researchers, ethics boards, and data access committees to consider group interests in biorepository research
Published: Apr 18, 2024
How we have engaged academic and community experts as leaders in Community Health Interests for Researchers & Oversight Networks (CHIRON)
Published: May 02, 2024
CHIRON scholars Astha Kapoor & Sam Moore explore the contours of what constitutes community in a biorepository context, how we might ensure representativeness, and what governance limits, if any, should be considered given the indefinite lifespan of these resources
Published: May 16, 2024
CHIRON scholar Maile Tauali’i guides us on the why and the how of building researchers’ capacity to limit group harm, the role of research institutions and regulatory bodies, and community power in biorepository contexts
Published: May 30, 2024
CHIRON scholar Joon-Ho Yu explores how researchers might identify when they need to invoke the consent of a community, even in the context of biorepository-enabeled research
Published: Jun 13, 2024
CHIRON scholar Anouk Ruhaak discusses what prompts communities to evolve and how change could impact the validity of a community's consent over time
Published: Jun 27, 2024
CHIRON scholar Melissa Creary considers the "speed of trust" in biorepository-enabled research: what indicators researchers should use to guide when and how to engage with communities
Published: Jul 11, 2024
CHIRON scholar Jasmine McNealy considers community consent as a requirement for the ethical conduct of biorepository research
Published: Jul 25, 2024
CHIRON scholars Anouk Ruhaak and Joon-Ho Yu team up to explore social license to operate, proposing a novel pathway to community consent
Published: Aug 15, 2024
Introducing the CHIRON Trustworthiness Calculator, a component of the CHIRON Toolkit designed to support researchers' self reflection on their research practice
Published: Sep 05, 2024
How will we approach evaluating the CHIRON toolkit? Lessons from other disciplines helps guide us toward meaningful assessment
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